Three years ago, I was asked by The Michael J. Fox Foundation to set up a meeting with Sen. Shelley Moore Capito, R-W.Va. The Fox Foundation was interested in securing Capito to be one of two lead sponsors in the U.S. Senate on a national Parkinson’s disease bill. It would be the first Parkinson’s-only legislation to ever be introduced in Congress.
The proposed legislation would create a national advisory council of federal agency representatives and non-federal experts, including patients, care partners, researchers, and others. The new advisory council would be chaired by the Secretary of Health and Human Resources and charged with coming up with a national plan for addressing Parkinson’s disease.
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